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How common is TSS?

Updated: 10/14/2022
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10y ago

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No one really knows how common TSS is - it could be anywhere from as many as 1 in 700 through to as few as 1 in 100,000.

Often statistics state that TSS occurs in 1 to 17 in 100,000 menstruating people per year - however this figure seems to be from CDC, so out of date and inaccurate. CDC stopped recording TSS cases in 1979, even when they were recording cases they only actually recorded atmost up to one thrid of all cases.

CDC figures are inaccuarate for several reasons;

  • Many cases were not serious enough to require medical attention.
  • There is no test for TSS so many cases may have been misdiagnosed.
  • CDC only counted cases with narrowly defined symptoms.
  • CDC only counted cases when 3 or more organs had failed.
  • Ignorance of TSS may have meant many doctors were unaware of TSS
  • Ignorance of procedure may have meant doctors did not report cases.
  • Many doctors simply did not have time to report cases to the CDC.

The majority of TSS cases did take place in the 1970's and 1980's due to the use of highly absorbent materials, following an outbreak of TSS linked to the tampon brand Rely new rules about ingredients that could be used were introduced, along with this tampon companies were also required to put instructions and TSS information on boxes.

However tampon manufacturers continue to use rayon fleece which increases risks of TSS, and chemicals within these types of tampons may also increase risks. Furthermore many women do not follow precautions with tampon use, and more younger women (with higher suspectibility to TSS) are using tampons than ever before. We are thus seeing an increase in TSS cases again, so figures may be far higher than 1 to 17 in 100,000.

Experts such as Dr. Patrick Schlievert believe that tampon-associated TSS cases could be as high as effecting 1 in 700 women during their lifetime - with many women not even realising they have suffered TSS. But without accurate diagnosis, reporting, and recording of TSS cases we have no way of knowing for sure how common TSS is.

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Data on Toxic Shock Syndrome warps probability. As TSS is associated with tampons, which make a lot of money for big companies who sell the most dangerous types of tampons, manufacturers misrepresent TSS statistics - CDC statistics are often quoted but these are grossly inaccurate for a number of reasons. It's estimated that 1 in 700 women will contract TSS at some point in their lives.


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What are the symptoms of toxic shock syndrome?

TSS isn't as rare as the companies lead you to believe. It's back with vengeance and killing young women all over but it's being hidden. My 20 year old daughter died in June using Regular absorbency tampons, changing like clockwork never leaving them in over 6 hours and alternating with pads. A friend of hers from the same school, in her class! had TSS just two months after she did!! She was 21. She read our warnings about flu symptoms and recognized it so early she removed the tampon and had her mom take her to the hospital and insisted to the Dr that it could be TSS. It saved her life. The truth is, the deadly toxins begin to multiply within 2 hours after inserting your first tampon. Regular, or Super! When you change a tampon after even just a few hours that toxin remains inside just waiting for you to put in a new tampon. It takes up right where it left off when it comes into contact with the viscose rayon in the tampon. The longer you continue to use tampons even while changing the more concentrated the toxin becomes, Once this toxin gets into your blood stream, (it can enter with only a couple of scuffed off cells from changing a tampon) it's 10,000 times more deadly than sepsis alone. The reason you need to use a pad at night for at least 8 hours is, you remove that rayon filled tampon and the toxin takes that 8 hours to dissipate, (die off) then in the morning you can start the deadly process all over again. Providing your tampon isn't leaving fibers behind..... A friend of ours just had TSS, was in a coma in ICU for 3 weeks and in the hospital another 2 weeks. She wasn't using a tampon, they only found a rayon fiber from the tampon she used the prior week. She just had surgery to remove the gangrene from her toes. She is 16. If you are young (under 28) you most likely don't yet have the antibodies for the toxin of the staphylococcus aureus bacteria, you can easily contract TSS. The symptoms are only flu symptoms! This is all my daughter had! 103.2 temp, ibuprofen brought that down, vomiting and diarrhea. That's IT! She walked into a hospital Friday and died Sunday! If you do choose to use tampons, 100% cotton tampons are the only way to be safe. There has never been a case of TSS from the use of a 100% cotton tampon. These are not sold at Walmart, Target, Walgreen or in CVS stores. You have to order them online or go to a health food store. 95% of women have the antibodies to fight TSS by the time they are 30 years old. Please don't take chances with your life. It isn't worth it!


What is toxic shock syndrome?

Toxic shock syndrome (TSS) is a rare but potentially fatal disease caused by a bacterial toxin. Different bacterial toxins may cause toxic shock syndrome, depending on the situation. The causative agent is Staphylococcus aureus.This infection can occur via the skin (e.g. cuts, surgery, burns), vagina (via tampon), or pharynx. However, most of the large number of individuals who are exposed to or colonized with toxin-producing strains of S. aureus or S. pyogenes do not develop toxic shock syndrome. One reason is that a large fraction of the population has protective antibodies against the toxins that cause TSS.[1] It is not clear why the antibodies are present in people who have never had the disease.11. http://en.wikipedia.org/wiki/Toxic_shock_syndrome

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Toxic Shock Syndrome (TSS) is a bacterial infection - anything that allows bacteria to multiply within your body or around a wound could potentially lead to TSS. Things such as wounds that aren't cared for or tampon use are common causes. TSS will only occur in those without immunity to TSST-1 toxins.


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What will not put a women at risk for TSS?

Tampons account for around 75% of all TSS cases so avoiding tampon use is a major way to avoid contracting TSS - instead of tampons women can use sanitary pads, menstrual cups, or softcups. Even switching from commercial tampons such as Tampax to organic cotton tampons such as Natracare can significantly reduce TSS risk. TSS can also be contracted as a result of injury or surgery, correct medical care and keeping bandages clean can significantly reduce the risk of TSS in these cases.


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